An Open Letter To The Vigilantes

To the Vigilantes:

We need to reimagine what it looks like to hold people accountable for taking advantage of and misusing things like service dog laws and accessible parking spaces, cause you’re breaking my heart.

Don’t get me wrong; I appreciate and admire your enthusiasm and zest for encouraging others to do the right thing and shaming them when they blatantly disregard the law. You’re braver and more dedicated than I.

There’s one small problem when it comes to many disability-related issues, though: The majority of them are not visible to the naked, untrained eye.

“No, I have a sense for these things. I can tell,” you say.

Let me clear something up for you. Playing detective by watching someone park in an accessible spot and exit the vehicle in a standing position, then concluding that he or she has stolen Grandma’s parking permit is not a demonstration of your sixth sense. It’s actually a shining example of what happens when you make assumptions – you look like an ass. Or something like that.

You’re trying to help. Great. I love it. But let’s see what happens when your well-intentioned attempts are ill conceived:

An 18 year old me, freshly moved into my dorm room after a summer of fighting with the college administration about whether or not my service dog would be allowed on campus and whether all of my classes could be moved to accessible spaces (everything was a struggle that first year), emerges from Target with a lapful of dorm essentials and two of my best friends. We have a well-rehearsed routine; I go right to the driver’s door and grab the handle for stability as I stand up, and one of the guys grabs my chair and loads it into the back of my Rav4 while I get situated in my seat. Normally, we’d pull out of that accessible parking space and be on our way without a second thought. Not this time.

“You don’t look real disabled to me,” shouts a big ugly guy with a beard from across the parking lot. (To be clear, I like beards.)

“Excuse me?”

“I said, you don’t look disabled!” he yells with growing animosity, and gives me the finger.

Yep. A grown man gave an 18 year old girl the finger.

Not just any 18 year old girl. An 18 year old that had undergone a bunch of painful operations and spent much of her young life fighting to be treated as an equal to her peers, all because of that disability you’re not totally sure she has.

This was after a surgery I had 3 years prior to this particular story. I was 15.

This was after a surgery I had 3 years prior to this particular story. I was 15. That I didn’t “look” real disabled at the time of the incident should have been a celebration, not an accusation.

My response to him that day isn’t even worth mentioning because I was so caught off guard. I think I just mumbled something about my wheelchair. I was mad and embarrassed, and all I could think about was how unfair of him it was to make such a personal judgment about me. (Any assumption about a person’s disability is very personal, by the way.)

Clearly, he hadn’t seen my chair; so, what did he see?

As he pulled into his parking spot in his huge, obnoxious, gas guzzling pickup truck, he saw three young people getting into an SUV that was displaying a disabled parking placard and parked in an accessible spot. He made a quick decision about what he saw: Regardless of the placard, these people didn’t fit his idea of disabled, and therefore, they were doing something wrong. Maybe he had a more “traditionally” disabled family member so it felt personal to him, or maybe he was just on a crusade because it made him feel like he was in charge. What he’ll probably never know is that he hurt the person he was supposedly trying to help.

I’d just won a battle with mainstream culture – my college – and this encounter totally put a damper on my victory. You see, confrontations like this are just nasty little reminders that I don’t really fit into anyone’s idea of normal. Not able bodied enough to be a normally regular, but not disabled-looking enough to be normally disabled. I’m not just being melodramatic when I say it wrecked my day.

I’m not the only one with stories like that one, and it’s certainly not the only one I have. Most of my friends who have disabilities – particularly young adults who drive and work – have had similar experiences. There was a story that made headlines a few months ago about a man in his 30s who had his BMW parked in an accessible space with his placard displayed. A stranger made an assumption based entirely on the type of vehicle and stuck a nasty note in the door handle. Turns out, this guy is an incomplete quad, just like me, and just happens to be professionally successful. Imagine that. A guy in a wheelchair who works hard and makes enough money to buy nice things. Unbelievable.

His wife responded by posting a photo of the note and a response to it on Facebook, and she brought up an excellent point. That is, if seeing a successful, hard-working person with a disability (or their possessions or significant others) causes such cognitive dissonance, it’s a problem. On the one hand, we want to empower people with disabilities to be independent, and on the other hand, we don’t believe it when we see it.

Mixed messages, folks. My head is spinning. I’m tired of being commended for being so normal (excuse me while I gag) one minute and then stared down ten minutes later when I pull into an accessible parking space or walk into a business establishment with my service dog. I’d really love to live in a world where, if I ever have a child with a disability, I don’t have to say, “Now be sure to look really disabled, Sweetie. We wouldn’t want one of those crazies ruining our day.”

I swear I’m not just here to complain. I have a solution, and it’s actually pretty easy. Are you ready, my Civilian Crime Fighters??

Instead of getting prematurely angry and making accusations, keep your cool and…wait for it…ask a question.

A couple of months ago, I was trying to find a parking space in a crowded public lot, and there was a car idling and not displaying a placard in an accessible space, and there was a woman in the passenger’s seat. This was the lot where I parked for work, and a lack of placards in the precious few accessible spaces was a common problem, so I was especially irritated. If I’d acted on it, I’d have thrown a fit and told her to move, but because I’ve been there, I knew that sometimes people forget to put their placards up. Maybe the driver had a disability and had just forgotten.

I got out of my car, tapped on the passenger’s window, and asked if she had a permit to park there. Her response: “Oh! I forgot to put it up! I’m sorry!”

Whether it was the appropriate use of the placard or not wasn’t up to me to decide, and it’s not up to you, Dear Vigilante. As any well adjusted human being knows, there’s often more to a story than meets the eye. If her response had been, “No, but my friend just ran inside and we’ll be gone in a minute,” I’d have guilt tripped the crap out of her and then told her she had to the count of ten to get the car out of that spot or I was calling the police. I’ve done it before. It’s quite vindicating, but only when I’m certain that the offender is actually offending.

So, what about identifying fake service dogs? A reader sent me a message recently and said she’d be happy to confront people if she knew how to tell if a dog was legitimate or not, and she wanted to know if I had any suggestions. The truth is, you really can’t tell just by looking. You can definitely tell whether a dog is well mannered or not, but it’s impossible to know if they’re legally compliant.

Two people might have poorly behaved service dogs – one with a hidden disability and one with a visible disability – and I guarantee you that the person with the hidden disability will get harassed and the other won’t, at least not on the issue of legitimacy. The problem of a bad service dog is totally separate from that of a fake one, so please be careful not to confuse them.

My suggestion: Again, ask a question. “Oh, what a pretty dog! I’m really interested in service dogs…do you mind if I ask how she helps you?” In this scenario, you’ve expressed interest instead of suspicion. If the dog’s legitimate, the handler will likely be happy to indulge you, at least for a minute, and no harm done. If not, the handler will either feel embarrassed and make up a lie, or they’ll confess, which actually happens more than you’d expect. Some people have no shame. None.

If they confess, you have the opportunity  to give them a piece of your mind, and then, by all means, please do. Unleash the fury you’ve kept bottled up since your last family get-together or you child’s last soccer game (that referee was a damn joke, and you know it) and make sure the entitled, conscienceless jerk has nightmares. You’re my hero.

Can we agree that it’s not nice to scream at (or leave notes for, or stare down, or whisper about) people who aren’t doing anything wrong, though, and that it might be worth the little bit of extra work to avoid making them feel like garbage? And can we also agree that it’s time to open our minds to the idea that folks with disabilities might look just like folks without them?

You’re reasonable people, so I think we can.


12 thoughts on “An Open Letter To The Vigilantes

  1. I’m a little conflicted with this post. I’m not sure it is ever wise to confront people, especially in Chicago. Just recently found myself in a situation where I honked my horn at the car in front of me because he stopped and blocked the road so nobody could get around him in order to let his car load of friends out of the car. The unloading area was not more than 15 feet away but he stopped and blocked me. So I honked. Guess what happened? He got out of the car and threatened me! If you see something, it is best just to be patient and wait. Don’t judge and don’t confront people. If you are confronted it’s best to ignore it and just keep doing what you’re doing.

    • I agree that it’s not always a good idea to confront people, but this post was not directed at people who normally keep to themselves – it addresses people who are prone to confronting people when it’s not appropriate, or in inappropriate ways. If you don’t normally do that, then don’t start on my account. 😉

  2. Alex, I remember the process you went through that resulted in the photo here (of you at 15). You experienced some very difficult moments just to get to that point when you were confronted at 18. You’ve endured a lot over the years. As simple as you make it sound (and as simple as it really is), I’m not sure that we can change how an entire culture reacts to moments like this one. But we can try. Sometimes, people will be rude. They will be mean. They will do things and say things that will be inappropriate. I don’t condone this behavior. I just recognize that it is in the human nature… sadly.

    We are proud of the woman you are. Your “normal” should be applauded compared to the majority of individuals out there roaming the streets… You are a dear.

    We love and miss you and hope to see you again someday.

    • Oof. You neighbors had a front row seat to that catastrophe of a recovery, and you were all so supportive. I was lucky to have such an involved, generous neighborhood. I think Cathy actually put my hair in the braid that it’s in in this photo.

      While I agree that sometimes people are rude and mean, I don’t think that excusing the attitude behind these reactions (that people with disabilities must fit a narrow visible profile) as human nature is the answer. Many cultural standards and stereotypes have been changed because people refuse to accept them. At the very least, I hope, through pieces like this, to encourage dialogue around how to make progress.

      Take care, Gardners!

  3. Thanks for your cogent article here.i have a service dog and often i look ok to the average person. I get dirty looks and questions. The questions can be bothersome for sure. Now i have one standard for answering a question, does the person seem sincere? Yeah, i know, kinda subjective .
    But recently my dog and i were resting on a bench and were suddenly surrounded by a group of four folks who stepped up very close and began w,” we wanna know about ur dog.How come u have a service dog? .”
    the tone was off and they were so close that my service dog tango got uptight and stood in front of me to separate them from us. I told them they were asking an inappropriate question and that we were resting. They got angry w me for not being respectful to them….. Go figure. Tango and i got up and stumbled on down the street after that. One of my problems is that pesky stumbling….tango is there to help me stay on my feet.
    I know there r fake service dogs, we all know that. However i would prefer the public not be vigelantes, as u say.the justice dept needs to educate the general public and be helpful w this

  4. Great post. Loved it. I have spent a good part of my life disabled (though I don’t look it now) and it is a slippery slope for others to decide who and how disabled someone is. Screaming insults doesn’t help. Accusing folks of being jerks doesn’t help. Treat others as you wish to be treated (even when they are doing something you think is wrong) and it will all work out.

  5. I have a SEVERE dog allergy. I’m extremely sensitive to dogs; I have gotten sick for 5 days because I was downwind of a dog in a car that was 50 feet away.
    I need to buy groceries like anyone else – but I do my grocery shopping very fast, in case a “service dog” appears. It’s likely a fake service dog anyway – the person just wanted to bring their pet grocery shopping with them.
    I shop early in the morning, hoping to avoid dogs because not many people are out yet. But the other day, someone appeared with a dog … I had to run out with only a bunch of radishes, and finish my shopping elsewhere.
    It’s not so much the bona fide service dogs, because there aren’t many of them around. But the fakes make life very difficult for allergic people.
    Dog allergies are not rare. A dog allergy can kill someone, if they have allergic asthma.
    But the people who go around with fake service dogs, seem to think allergies don’t exist.

  6. I agree it is hard to tell sometimes the real dogs from the fakes. Fortunately for me both my disabilities are somewhat hidden from view. I drive a truck, I’m big and its easier to get in and out of it plus the back seat is perfect for my DAD. When I park in the designated spot and climb out then let the big apricot poodle out I get lots of weird looks so I always make sure her vest is on, even in hot weather. Most people don’t realize a DAD will alert to strangers if the smell is obvious to them so in a crowded room it isn’t uncommon for her to try to tap a stranger’s leg or if she can’t reach them let out a little bark and point them out. That can lead to complaints but she is actually doing her job, albeit a little too well. She has a new thing going on I haven’t figured out, she now barks at cancer patients too. It isn’t trained she just does it and I don’t reward for it. My trainers are a little baffled on how to stop it, she gets defensive and places herself between me and anyone she thinks has cancer and will bark until I stop her or they back off. A DAD lives by the nose, apparently she is still learning some things with hers. I use her for balance as well as her nose but to someone unknowing, they’s think she wasn’t well behaved at times. She can be in a down for over an hour and smell someone with cancer 50 feet away and alert instantly.

    As to the fake dogs, from what I’ve seen most just have a generic ” service dog” patch and won’t answer the 2 questions allowed by the ADA. Using specific patches takes the guess work out of it, my dog wears patches with a poodle saying low glycemic alert dog and diabetic alert dog. The only stupid questions I ever get is how I deal with a dog with diabetes since they don’t understand what is going on. People have asked me how many shots the dog gets a day, crazy stuff like that. I think store operators should ask the 2 questions and if they can’t answer them right, they should get reported to the police for fraud.” He makes me feel good” is not appropriate, thus fraudulently representing a disability. I’m afraid it will come down to us having to prove a disability due to all the fakes running around out there. I wear medical ID tags matching a set on the dog already just in case.

    If it would get the fakes caught, I think they should be allowed to ask for some proof of a disability for those of us with no visible symptoms. While it is an invasion of privacy, it would be worth it to stop the free loaders. and fakers.

  7. Thank you but what can we do. I live in Hilo, Hawaii and am so beyond frustrated with people and their scraggly untrained dogs going everwhere, Safeway, Walmart , etc, and meanwhile I have my well groomed and highly trained seizure dog, that I put in the cart seat but always use an infant seat barrier and I get stares and have issues at the places that are getting fed up. In California they are doing water shaming, why would it be wrong to shame those violate the law and make life harder for those of us who already suffer. I would give anything NOT to have to take a dog with me everywhere I go as it is a constant reminder of my disability.

  8. I may have one of those dogs you consider not real or even illegal. I have had pets all my life, and when I finally found out the nasty thing I’ve been struggling with was M.S., I wanted a service dog. But I had just gotten a G.S.D. puppy, a girl I named Lily. I took her to a local trainer who helped me but also gave me a book about training my own service dog. Within 6 months I was paralyzed in one leg and Lily began “working” because I couldn’t fit my walker or chair in my house. She gingerly led me around, picked things up and steadied me. She even helped a little get me up when I fell. Now she is nearly 4 yo and is my fully functional service dog. I hope you will be open to this and not be a “snob” about how my dog was trained. She is a pro and when she puts HER vest on she is also ready to work. We could pass any cert class if I needed to, but the law doesn’t require me to go through the expense and trouble. Thanks for listening.

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